At Target CSF Leaks, we are a UK-based charity dedicated to raising awareness of cerebrospinal fluid (CSF) leaks and providing critical support for those affected by this challenging condition. Whether you’re a patient, healthcare professional, or supporter, our mission is to connect you with informative resources and support networks.
Who We Are and What We Do
Founded with a commitment to improving CSF leak diagnosis, care, and patient quality of life, Target CSF Leaks offers unique programs and resources, including our Leaky Café virtual community and the CSF Leak SurFIVE’r Kit for healthcare professionals. These tools empower both patients and practitioners with essential information, practical support, and a shared understanding of the challenges posed by spinal and cranial CSF leaks.
How We Support CSF Leak Patients and Families
Through our informative guides, symptom tracking tools, and a vibrant, international support community, Target CSF Leaks stands by those navigating the complexities of CSF leaks. Our charity is committed to making a real impact – working alongside medical professionals and advocating for improved recognition and treatment within the NHS and beyond.
Join Us in Raising Awareness
As a charity, we believe in making a difference not only in the lives of individual patients but also in the broader medical community’s understanding of CSF leaks. Join us to learn more about symptoms, treatment pathways, and ways to support CSF leak awareness. Whether you’re here for answers, to connect with others, or to join our mission, everyone has a place at Target CSF Leaks.
A Dream Realised: The Target CSF Leaks Patient Grant Scheme
Since before we were even a registered charity, our Founder had one big goal in mind: to one day launch a grant scheme that would help patients on low or no income access an initial private consultation with a CSF leak specialist.
We are proud to launch the Target CSF Leaks Patient Grant Scheme, created to provide practical support for patients who need help accessing expert care.
Exclusively available to our members, this milestone marks an important step in breaking down barriers to diagnosis and treatment.
👉 Find out more about the Patient Grant Scheme
👉 Not a member? Join us today from only £8 a year.
Discover the CSF Leak SurFIVE’r Kit: making a difference in CSF leak awareness!
This powerful kit is here to help ‘Engage your GP’ and raise awareness about cerebrospinal fluid (CSF) leaks. Collectively, we can encourage more GPs to understand the condition, discuss CSF leaks confidently with patients, and improve the lives of patients nationwide.
🎥 Watch our video to learn more: Watch Now
🛒 Get your CSF Leak SurFIVE’r Pack(s) here
Consultation Aid
Describing your symptoms clearly at first presentation can make a real difference. Our free patient-held aid helps you:
It uses clear, measured language to support safe and effective conversations with clinicians, helping you be heard and understood.
Plus, members have access to exclusive support options to help prepare for appointments.
The Leaky Café Coffee House was what started it all off! Established in October 2023 as a virtual gathering space for those living with the challenges of a CSF leak. We meet every Wednesday at 11:00am via Zoom, it provides a safe space for members to connect and share experiences.
This often misunderstood and under-recognised condition can lead to feelings of isolation, as its impact can make everyday activities and socialising difficult. The Leaky Café offers a welcoming and supportive environment where individuals can find connection with others who truly understand, fostering a sense of community and belonging.
The Leaky Café is one of many ways of giving back to those who join us at Target CSF Leaks – a gift of community, understanding, and support. We welcome you to become part of our community today, where no one is ever alone.
If you’re living with a CSF leak or supporting someone who is, you’re very welcome to join our Target CSF Leaks Community Forum on Facebook. This is a private group, meaning only members can see what’s shared. It’s a safe, supportive space run by the charity’s trustees, where you can connect with others who truly understand.
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